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African and Caribbeans Alzheimer's Awareness

African and Caribbeans Alzheimer's Awareness
Created:
Saturday, 21 April 2012
Group Admins:
  • My mum suffers from this disease and this group really has given me insight into alzheimers and the symptons
    groups.wall 149 days ago
  • Say something about these photos...
      Say something about these photos...
    photos 201 days ago
  • Dementia is at an all time high among the Black community it effects more people than Cancer and Strokes combined. Please help us to promote Dementia Awareness. Please join Culture Dementia UK,The UK Music Industry, The Mayor of Brent and other dignitaries in the fight against dementia at our Fundraising and Awareness Ball.
    Tickets On Sale Now!!!!!
    Phone 07951335202
    www.eventsbot.com/events/eb444206118
    www.culturedementiauk.org
    photos 201 days ago
  • Culture Dementia UK

    24hr Crisis Help Line
    0800 014 8682
    photos 303 days ago
  • Culture Dementia UK

    We are a National charity. We were set up to support carers and sufferers of dementia among the African/Caribbean community.We identified the need for such an organisation. After researching we found that there are no other groups in the country that caters specifically for the African/Caribbean Community.
    Dementia especially caused by Alzheimer's Disease is a very sensitive subject among the African/Caribbean community. Mental health illnesses are not openly discussed therefore they are not accessing the care and support available to alleviate the pain and distress the disease causes. Many are unaware of Alzheimer's Disease, the symptoms or how to care for sufferers.
    Sufferers are sometimes inappropriately treated and carers suffer in silence.
    Our principle function is to dispel the myth of Dementia and uphold the dignity of sufferers and of old age.
    We aim to educate and provide support to carers. To educate African/Caribbean communities in the causes of dementia: to promote education in all matters relevant to dementia and provide counselling and respite.
    Through our work we have discovered that dementia especially caused by Alzheimer's Disease is also stigmatised among most ethnic cultural groups. ​
    We therefore support the entire Black Minority Ethnic BME community and will never turn any Sufferer or Carer away from our doors.
    photos 303 days ago
  • A Black Family Coping with Alzheimer's

    (Source: New America Media) – The police were called to Ann Small’s home a couple times before her husband was diagnosed with Alzheimer’s disease. She didn’t know why he was acting so differently, and at times, violently. She rationalised that perhaps the two were just spending too much time together and becoming frustrated with each other. The truth was that James, her 82- year-old husband of 56 years, had Alzheimer’s disease.

    Even as Alzheimer’s has progressed, James remains confident that nothing happens to him apart from what God intends. “I don’t worry about stuff because I know He has His hand out for me,” Small said. No matter what happens, he concluded, “My life has been blessed.”

    Ann said that the early signs were hard for her to detect, but once James was diagnosed, she could look back at the two previous years and notice changes.

    Their daughter, Kathy, noticed that her “handyman” father had difficulty completing projects like painting and hanging blinds. She described a time when he became confused while making shelves and a comment he made while he drove on the freeway with her in the car. “He told me that for a moment he didn’t know where he was.”

    James has diabetes and his mother had dementia, two risk factors linked to higher risk of developing Alzheimer’s. When they took him to his primary physician, the doctor noted that Small’s demeanor was different and that he couldn’t remember how to take his medication. The doctor referred him to a psycho-neurologist, who diagnosed James with Alzheimer’s in January, 2011.

    Small said that she also enjoys the outings that she and her husband attend through the Alzheimer’s Association. However, she noted that they are the only black family at the events. “As a black community, we don’t want to talk about it,” she said, as a possible explanation for the lack of black participation at the Alzheimer’s Association.

    Go to full story: http://newamericamedia.org
    groups.wall 342 days ago
  • The Alzheimer’s Show, taking place on 15th and 16th June 2012, at ExCeL London, is the UK’s first national exhibition, conference and meet-up dedicated to the dementia community of over 2 million people who live and work with Alzheimer’s disease and all other forms of dementia on a daily basis. The Prime Minister has made it a personal priority to tackle the stigma and lack of understanding of dementia and fight back against it. It is a priority that extends beyond government. It is for businesses and communities to tackle. All of us here at The Alzheimer’s Show firmly believe that there is a collective responsibility, that’s why we launched the show – to bring the dementia community together. Those with Alzheimer’s and dementia, their carers, their families, professionals, businesses, and speakers will be brought together for the first time. The event will showcase the latest products and services which can make an immediate and real difference to their lives but are often so hard to find. This unique event which will offer visitors immediate access to in depth conference sessions, practical workshops, interactive features and many suppliers of products and services including residential and home care, telecare, legal advice, financial advice, mobility equipment, assistive technology and much more. For more Information and to book ticket please vist the site below: http://alzheimersshow.co.uk/tickets/ ...
    groups.discussion 381 days ago
  • Posted a new discussion, Barnet African Caribbean Association
    What does it do?We cater for the needs of the African and Caribbean elderly, Stroke and Alzheimer’s sufferers, as well as providing a “Home from Hospital” service. Our mission is to promote care, general well-being and rehabilitation of elderly people with physical or mental disability within a friendly, stimulating, caring, support, and informal, yet exciting environment. A hot meal is provided as well as social activities such as exercise classes, arts and crafts, quizzes, games and health visitors sessions. Transport is provided. Who it is for: for African and Caribbean elderly, Stroke and Alzheimer’s sufferers Ethnic / cultural aspects: African and Caribbean elders Where it is available: Local service covering: Barnet (Greater London). How to access or apply for it: see contact details above Classification(s): Socialising, Care, Information & options appraisal, Day centres, Dementia, Day centres, Support Telephone: 020 8202 0095 http://www.housingcare.org/service/provider-24882-barnet-african-caribbean-association.aspx ...
    groups.discussion 383 days ago
  • My mother has this disease, which is one of the reasons I started this group.
    groups.wall 385 days ago
    CherylJackson Fantastic group Karlos. Sorry to hear your mother is a sufferer. Keep up the great work you are doing helping
    to promote dementia awareness.301 days ago
  • Facing Alzheimer's: An African-American Perspective 01:41
    Facing Alzheimer's: An African-American Perspective http://tmktv.com Currently there is little information about how Alzheimer's Disease affects African-American families. Research conducted by the Alzheimer's Association indicates there are many instances where families insulate themselves and resist reaching for help. Hosted by Richard Steel, Facing Alzheimer's takes an informative, compassionate and in-depth look at the issues African-American caregivers face when confronting Alzheimer's. Find out more at: http://facingalzheimers.com
    videos 386 days ago
  • What is Alzheimer's disease? 03:15
    What is Alzheimer's disease? What is Alzheimer's disease?
    videos 386 days ago
  • Posted a new discussion, Getting a diagnosis
    f you are concerned about your own health, or the health of someone close to you, it is important to seek help from a GP. An early diagnosis will have a number of benefits including the opportunity to plan for the future and access treatment, advice and support. There is no straightforward test for Alzheimer's disease or for any other cause of dementia. A diagnosis is usually made by excluding other causes which present similar symptoms. The GP will need to rule out conditions such as infections, vitamin deficiency, thyroid problems, depression and the side-effects of medication. Specialists The GP may ask a specialist for help in carrying out a diagnosis. The specialist may be an old-age psychiatrist, a neurologist, a physician in geriatric medicine or a general psychiatrist. Who the person sees will depend on their age, how physically able they are and how well services are developed in the local area. Tests The person being tested will usually be given a blood test and a full physical examination to rule out or identify any other medical problems. The person's memory will be assessed, initially with questions about recent events and past memories. Their memory and thinking skills may also be assessed in detail by a psychologist. A brain scan may be carried out to give some clues about the changes taking place in the person's brain. There are a number of different types of scan, including computerised tomography (CT) and magnetic resonance imaging (MRI). Treatment There is currently no cure for Alzheimer's disease. However, drug treatments are available that can temporarily alleviate some symptoms or slow down their progression in some people. People with Alzheimer's have been shown to have a shortage of the chemical acetylcholine in their brains. The drugs Aricept, Exelon and Reminyl (trade names for the drugs donepezil hydrochloride, rivastigmine and galantamine) work by maintaining existing supplies of acetylcholine. As of March 2011, these d ...
    groups.discussion 386 days ago
  • Posted a new discussion, What causes Alzheimer's disease?
    So far, no one single factor has been identified as a cause for Alzheimer's disease. It is likely that a combination of factors, including age, genetic inheritance, environmental factors, lifestyle and overall general health, are responsible. In some people, the disease may develop silently for many years before symptoms appear. Age Age is the greatest risk factor for dementia. Dementia affects one in 14 people over the age of 65 and one in six over the age of 80. However, dementia is not restricted to older people: in the UK, there are over 17,000 people under the age of 65 with dementia, although this figure is likely to be an underestimate. Genetic inheritance Many people fear that they may inherit Alzheimer's disease and scientists are currently investigating the genetic background to Alzheimer's. We do know that there are a few families where there is a very clear inheritance of the disease from one generation to the next. This is often in families where the disease appears relatively early in life. In the vast majority of cases, however, the influence of inherited genes for Alzheimer's disease in older people seems to be small. If a parent or other relative has Alzheimer's, your own chances of developing the disease are only a little higher than if there were no cases of Alzheimer's in the immediate family. For more information see our factsheet on Genetics and dementia (405). Environmental factors The environmental factors that may contribute to the onset of Alzheimer's disease have yet to be identified. A few years ago, there were concerns that exposure to aluminium might cause Alzheimer's disease. However, these fears have largely been discounted. Other factors Because of the difference in their chromosomal make-up, people with Down's syndrome who live into their 50s and 60s are at particular risk of developing Alzheimer's disease. People who have had severe head or whiplash injuries also appear to be at increased risk of develop ...
    groups.discussion 386 days ago
  • Posted a new discussion, Mild cognitive impairment
    Recently, some doctors have begun to use the term mild cognitive impairment (MCI) when an individual has difficulty remembering things or thinking clearly but the symptoms are not severe enough to warrant a diagnosis of Alzheimer's disease. Recent research has shown that individuals with MCI have an increased risk of developing Alzheimer's disease. However, the conversion rate from MCI to Alzheimer's is low (about 10-20 per cent each year), and consequently a diagnosis of MCI does not always mean that the person will go on to develop Alzheimer's. ...
    groups.discussion 386 days ago
  • Posted a new discussion, Alzheimer's the Symptoms
    People in the early stages of Alzheimer's disease may experience lapses of memory and have problems finding the right words. As the disease progresses, they may: become confused and frequently forget the names of people, places, appointments and recent events experience mood swings, feel sad or angry, or scared and frustrated by their increasing memory loss become more withdrawn, due either to a loss of confidence or to communication problems have difficulty carrying out everyday activities - they may get muddled checking their change at the shops or become unsure how to work the TV remote. As the disease progresses, people with Alzheimer's will need more support from those who care for them. Eventually, they will need help with all their daily activities. While there are some common symptoms of Alzheimer's disease, it is important to remember that everyone is unique. No two people are likely to experience Alzheimer's disease in the same way. ...
    groups.discussion 386 days ago
  • Posted a new discussion, What is Alzheimer's disease?
    Alzheimer's disease is the most common cause of dementia, affecting around 496,000 people in the UK. The term 'dementia' describes a set of symptoms which can include loss of memory, mood changes, and problems with communication and reasoning. These symptoms occur when the brain is damaged by certain diseases and conditions, including Alzheimer's disease. This factsheet outlines the symptoms and risk factors for Alzheimer's disease, and describes what treatments are currently available. Alzheimer's disease, first described by the German neurologist Alois Alzheimer, is a physical disease affecting the brain. During the course of the disease, protein 'plaques' and 'tangles' develop in the structure of the brain, leading to the death of brain cells. People with Alzheimer's also have a shortage of some important chemicals in their brain. These chemicals are involved with the transmission of messages within the brain. Alzheimer's is a progressive disease, which means that gradually, over time, more parts of the brain are damaged. As this happens, the symptoms become more severe. ...
    groups.discussion 386 days ago
Alzheimer’s disease is more prevalent among the African and Caribbean Black Community than among Whites - with estimates ranging from 14% to almost 100% higher The number of African and Caribbeans aged 65 and over will more than double by 2030, from 2.7 million to 6.9 million by 2030. There is a great familial risk of Alzheimer’s disease in African and Caribbeans Genetic and environmental factors may work differently to cause Alzheimer’s disease in the African Caribbean community
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